«Мне нравится, когда меня считают киборгом»: мотивация кохлеарной имплантации глухих людей во взрослом возрасте

  • Алена Бабкина Национальный исследовательский университет "Высшая школа экономики" (Университет НИУ ВШЭ), Москва, Россия.
  • Никита Большаков Национальный исследовательский университет "Высшая школа экономики" (Университет НИУ ВШЭ), Москва, Россия.

Аннотация

Cochlear implantation (CI) is a relatively new phenomenon for Russia. It has had a significant impact on both the lives of individuals with hearing disabilities and the entire community of the deaf and hard of hearing people. The first CI operations in Russia were performed in the early 1990s, and already in the first decade of the 21st century, implantation took root in medical practice. In recent years, in the world and in Russia, there has been a tendency to implantation of adults with long-term experience of deafness. These people are usually classified by specialists in the category of unpromising patients, and the operation itself is considered risky. In the presented article, based on the results of a qualitative study, which included interviews with CI users, as well as with experts, the main motives determining the decision to perform implantation of adult deaf people are considered. As it was found, the decision on CI is motivated not only by medical indications, but also by the social motives of the individual. These include communicative, professional and individual-personal. In addition, a fundamental role in this process is played by a person's rejection of the culture of the deaf, lack of full-fledged involvement in the life of the deaf community, self-determination and perception of one's own deafness. According to CI users, the operation does not make it possible to turn a person into a “hearer,” and the traditional binary opposition of deaf / hearer identities is limited, resulting in hybrid identities. At the moment, the Institute of CI for adults has not yet been formed in Russia. This significantly complicates the process of integrating the CI user into the hearing society and requires a revision of the work with this category of people with hearing impairments.

Литература

Beyea J.A., McMullen K.P., Harris M.S., Houston D.M., Martin J.M., Bolster V.A., Moberly A.C. (2016) Cochlear implants in adults: effects of age and duration of deafness on speech recognition. Otology & Neurotology, 37(9): 1238–1245.

Bolshakov N.V. (2016) Ot deviatsii k identichnosti: transformatsiya nauchnykh podkhodov k ponimaniyu glukhoty [From deviation to identity: transformation of scientific approaches to understanding deafness]. Zhurnal sotsiologii i sotsialnoy antropologii [The Journal of Sociology and Social Anthropology], 2(85): 160–174 (in Russian).

Carter M.J., Mireles D.C. (2016) Deaf identity and depression. In: Stets J.E., Serpe R.T. (eds.) New directions in identity theory and research. Oxford University Press: 509–538.

Chapman M., Dammeyer J. (2017) The relationship between cochlear implants and deaf identity. American annals of the deaf, 162(4): 319–332.

Christiansen J.B., Leigh I. (2002) Cochlear implants in children: Ethics and choices. Washington, DC: Gallaudet University Press.

Clark G.M., Hallworth R.J., Zdanius K. (1975) A cochlear implant electrode. Journal of Laryngology and Otology, 89: 787–792.

Crathorne L., Bond M., Cooper C., Elston J., Weiner G., Taylor R., Stein K. (2012) A systematic review of the effectiveness and cost‐effectiveness of bilateral multichannel cochlear implants in adults with severe‐to‐profound hearing loss. Clinical Otolaryngology, 37(5): 342–354.

Davis, L. (2002). Bending over backwards: Disability, dismodernism and other difficult positions. New York: New York University Press.

Diab Kh.M., Daikhes N.A., Yusifov K.D., Pashchinina O.A., Kondratchikov D.S., Umarov P.U., Kuznetsov A.O. (2015) Oslozhneniya kokhlearnoy implantatsii [Complications of cochlear implantation]. Annaly khirurgii [Annals of Surgery], 4: 5–8 (in Russian).

Eisen M.D. (2006) History of the cochlear implant. In: Waltzman S.B., Roland J.T. Jr. (eds.) Cochlear implants. New York: Thieme: 1-10.

Gill C. J. (1997). Four types of integration in disability identity development. Journal of Vocational Rehabilitation, 9: 39–46.

Glade R. (2018) A qualitative analysis of auditory rehabilitation for adults with cochlear implants. The Volta Review, 118(1–2): 88–126.

Hogan A. (1997) Implant outcomes: towards a mixed methodology for evaluating the efficacy of adult cochlear implant programmes. Disability and rehabilitation, 19(6): 235–243.

Iarskaia-Smirnova E.R. (2001) Men and women in the land of the deaf. Odezhda dlya Adama i Evy: Ocherki gendernykh issledovanii [Clothes for Adam and Eve: Essays on Gender Studies]. Мoscow: INION RAS: 221–236 (in Russian).

Koroleva I. (2009) Kokhlearnaya implantatsiya i slukhorechevaya reabilitatsiya glukhikh detei i vzroslykh [Cochlear implantation and hearing and speech rehabilitation of deaf children and adults]. Moscow: Karo (in Russian).

Kukushkina O.I., Goncharova E.L. (2017) «3P-reabilitatsiya» detey s KI. Osnovnyye polozheniya i otlichiya ot slukho-rechevoy reabilitatsi. [“3P-rehabilitation” of children with CI. Basic provisions and differences from auditory-speech rehabilitation]. Al'manakh Instituta korrektsionnoi pedagogiki RAO [Almanac of the Institute of Correctional Pedagogy of the Russian Academy of Education], 30: 50–85 (in Russian).

Ladd P. (2003) Understanding Deaf Culture: In Search of Deafhood. Clevedon: Multilingual Matters.

Lane H.L. (2006) Construction of Deafness. In: Davis L. J. (ed.) The Disability Studies Reader. New York: Routledge: 79–103.

Mauldin L. (2016) Made to hear: Cochlear implants and raising deaf children. Minneapolis: University of Minnesota Press.

Mauldin L. (2019) Lessons Learned: How Studying Cochlear Implantation Reveals the Context in which d/Deaf Identities are Formed. In: Leigh I.W., O'Brien C.A. (eds.) Deaf Identities: Exploring New Frontiers. Oxford University Press: 96–119.

McIlroy G., Storbeck C. (2011) Development of deaf identity: An ethnographic study. The Journal of Deaf Studies and Deaf Education, 16(4): 494–511.

Padden C. (1980) The deaf community and the culture of Deaf people. In: Baker C., Battison R. (eds.) Sign language and the deaf community Washington, DC: National Association of the Deaf: 89–103.

Padden C., Humphries T. (1988) Deaf in America: Voices from a culture. Cambridge, MA: Harvard University Press.

Pancaldi G. (2003) Volta: Science and culture in the age of enlightenment. Princeton: Princeton University Press.

Paul P.V. (1998) Literacy and deafness: The development of reading, writing, and literate thought. Pearson College Division.

Sagatova G.S. (2012) Perspektivnost' kokhlearnoy implantatsiy.[Prospects for cochlear implantation]. Klinicheskaya meditsina Kazakhstana [Clinical Medicine of Kazakhstan], 2(25): 139–141 (in Russian).

Salehomoum M. (2020) Cochlear Implant Nonuse: Insight from Deaf Adults. The Journal of Deaf Studies and Deaf Education, 25(3): 270–282.

Sataeva A.I. (2008) Kokhlearnaya implantatsiya kak sredstvo pomoshchi glukhim detyam [Cochlear implantation as a means of helping deaf children]. Vospitanie i obuchenie detei s narusheniyami razvitiya [Parenting and Education of Children with Developmental Disabilities], 1: 55–63 (in Russian).

Schein J.D. (1989) At home among strangers: exploring the deaf community in the United States. Washington, DC: Gallaudet University Press.

Spencer L.J., Gantz B.J., Knutson J.F. (2004) Outcomes and achievement of students who grew up with access to cochlear implants. The Laryngoscope, 114(9): 1576–1581.

Tavartkiladze G.A. (2017) Istoriya kokhlearnoy implantatsii [History of cochlear implantation]. Al'manakh Instituta korrektsionnoi pedagogiki RAO [Almanac of the Institute of Correctional Pedagogy of the Russian Academy of Education], 30:10–26 (in Russian).

Todini L., Cavicchiolo S., Ceriani N., Ugazio G., Zaghis A. (2006) Cochlear implant failures in pre-lingually deaf adolescents. Venice, 8th European Symposium on Paediatric Cochlear Implantation.

Valencia D.M., Rimell F.L., Friedman B.J., Oblander M.R., Helmbrecht J. (2008) Cochlear implantation in infants less than 12 months of age. International journal of pediatric otorhinolaryngology, 72(6): 767–773.

Venail F., Vieu A., Artieres F., Mondain M., Uziel A. (2010) Educational and employment achievements in prelingually deaf children who receive cochlear implants. Archives of Otolaryngology — Head & Neck Surgery, 136(4): 366–372.

Wheeler A., Archbold S., Gregory S., Skipp A. (2007) Cochlear implants: The young people's perspective. Journal of Deaf Studies and Deaf Education, 12(3): 303–316.

Woodward Jr J. C. (1974) Implicational variation in American Sign Language: negative incorporation. Sign Language Studies, 5(1): 20–30.

Опубликован
2022-09-15
Как цитировать
Бабкина, А., & Большаков, Н. (2022). «Мне нравится, когда меня считают киборгом»: мотивация кохлеарной имплантации глухих людей во взрослом возрасте. ЖУРНАЛ СОЦИОЛОГИИ И СОЦИАЛЬНОЙ АНТРОПОЛОГИИ, 25(3), 129-149. извлечено от http://jourssa.ru/jourssa/article/view/2400